A father who went on a land march for a child with a rare disease... "Share your hope."

2024.11.21. AM 05:32
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There is a father who went on a national tour for a child with a rare disease whose muscles are gradually losing their strength.

The cost of medicine for treatment alone reaches 4.6 billion won, and my dad is walking around the country to catch even a small hope like straw.

Reporter Kim Ki-soo met.

[Reporter]
Three-year-old Sarang who likes to play in the sand like any other age.

Sarang was diagnosed with a muscle disease called 'Ducene muscular dystrophy' in May.

It is a disease in which muscles gradually lose their strength and lose their lives in their 30s after being in a wheelchair in their teens and using a respirator in their 20s.

It usually occurs in boys, but in girls, symptoms appear at a probability of one in 50 million.

Although it is relieving the muscles that are hardening through rehabilitation treatment, it slows down the progress and there is no suitable treatment in Korea.

[Joo Ki-chan / Rehabilitation: In the case of love, it progresses a little unusually fast. So if your muscles contract from the leg side to the breathing muscles, it becomes dangerous....]

Sarang has to go to the U.S. where she has medicine in order to receive treatment on time, but the price of medicine alone is 4.6 billion won.

[Lee Sang-ah / Mom: Love is 4.6 billion won] It's a number that doesn't feel real, so we couldn't solve it even if we sold everything we had..]

In order to collect Sarang's medical expenses, my father went on a land tour.

I had surgery on my knee four times due to chondroplasia, but I walk and walk because I want to save Sarang.

Sarang's dad went on a 740km journey to Gwanghwamun, Seoul, going around the country starting with Busan.

When I saw my mother who went on a land march to treat a child with the same disease abroad, I immediately put it into action.

[Jeon Yo-sep / Sarang's dad: I saw an article that a Chilean mother raised more than 5.3 billion won to save her son from the same disease. As soon as I saw it, I couldn't think of anything else and I should do it too....]

Sarang's dad is receiving a lot of support from strangers as he walks down the street, and he hopes Sarang will not lose hope.

[Jun Yoseph / Sarang's dad: Dad will keep walking with you. I love you. Way to go!]
I'm Kim Ki-soo,
YTN.





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