[Issue ON] "It's 4.6 billion won for medicine".Dad walks 740km to get rare disease

■ Host: Lee Harin Anchor
■ Starring: Jeon Yo-sep

* The text below may differ from the actual broadcast content, so please check the broadcast for more accurate information. Please specify [YTN NewsON] when quoting.

[Anchor]
Then I'll connect with my father, Jeon Yo-sep, who went on the land journey. Hello, father. I heard that the land journey began in Busan earlier this month. Where are you going now?

[Former Concept]
I left Gwangalli, Busan, on the 5th and finally arrived in Cheongju yesterday.

[Anchor]
If you've gone all the way to Cheongju, I think you're halfway there. I've also seen a video posted on YouTube, but I'm sure it's not an easy journey even though your father is young. It's same. Sarang is 3 years old? It's a rare disease, so please explain what kind of disease it is.

[Former Concept]
It's a muscle disease called Dusen's muscular dystrophy. It's a disease usually caught in boys. In the case of girls, only those who do not have symptoms are caught. Sometimes, there is a 1 in 50 million chance of showing the same symptoms as boys. That's the case with our love, and as you explained earlier, the prognosis is. So Sarang has a lot of those symptoms right now. You have to hold the stairs railing and go up and down, and if you overdo it, you feel very tired. When my immune system is weak and I am sick, it directly hits my muscles, and at night, my muscle cramps and stiffness become severe, so I often can't sleep by screaming single joints.

[Anchor]
We're showing you the video of Sarang right now. I'm watching you touch your legs like this, and your muscles are dying, and I think it's too heavy and scary for a 3-year-old Sarang to handle. The price of the drug is 4.6 billion won, and this is the cost of a single injection?

[Former Concept]
That's right. It's very expensive.

[Anchor]
I heard that it's not the only reason for the long journey, even though it's a lot of money.

[Former Concept]
In fact, injections are too expensive, but they cannot be supported in Korea. Above all, there is a golden time for this to enter our country. It is effective when the muscles are as active as possible and the muscle cells are alive until the age of 4 to 5. In fact, we have no choice but to miss the golden time before it is introduced in Korea.

[Anchor]
So we have 1 or 2 years left, right?

[Former Concept]
That's right.

[Anchor]
For Sarang, next year will be the golden time.

[Former Concept]
That's right.

[Anchor]
But now, your father's story is also being conveyed unfortunately. Your father also has a rare disease?

[Former Concept]
In fact, I also have multiple polyps called capsule-type polyps in my rectum, but the problem is that it gets out of control and bleeds. Two years ago, there was so much bleeding that I collapsed due to low blood pressure shock and had a two-month hospitalization procedure. Last year, the polyps were too big to handle, so I had surgery. So, you need to remove polyps that keep growing every six months to control bleeding and prevent hypotension shock.There is such a disease.

[Anchor]
Your father also has a rare disease, so he says it's a journey for his child, but it won't be easy. Lastly, if there's anything you want to say to the viewers, I think you'll be able to feel comfortable.

[Former Concept]
Hello, everyone. My name is Love's dad, Jeon Yoseph. I'm doing a challenge called Miracle to Sarang.
It's a challenge that gives you that miracle that can give you health and love. I'd really appreciate it if you could present a miracle to Sarang. I would appreciate it if you could help Sarang grow up to be a child who can walk happily until she becomes a grandmother and give joy to many things and share love with people as their name suggests, so that she can continue to walk and get married when she grows up.

[Anchor]
Father, cheer up until Sarang can walk. I wish YTN and YTN viewers all the best. So far, I've talked with my father, Jeon Joseph on the phone. Thank you, father.